Saw a new allergist last week who confirmed I should be getting tested for HAT (Hereditary Alpha Tryptasemia) with my current tryptase levels hovering around 15. I sent off for the testing kit. Was just wondering if anyone else here has done this testing and if so, did it change your treatment plan at all? And also how long did the testing process take (in terms of getting the kit shipped to you + then getting the results)?
I was diagnosed last year and started on Cetirizine/Famotidine/Ketotifen. Some of my symptoms have lessened to almost nil (outside of triggers making them suddenly appear again), but one of my biggest issues is chronic dry cough and a feeling of airway inflammation. I'm one of those people who has likely had MCAS their whole life (am saving up money to get HAT testing) and this has been persistent since childhood. Had a bunch of breathing tests done over the years and I don't have asthma, and puffers have never seemed to work all that well. Some days it's not too bad, but days like today it's so incredibly uncomfortable. Has anyone had any luck helping these symptoms and if so, what helped it?