u/Independent_Income63

So I’ve been on adalimumab and for a while MTX, but I’ve stoped MTX due to stomach issues, for over a year. About a month ago I lost feeling in my right arm/hand. Saw the pcp, got the xray… showed some stuff at c5/6. Did a prednisone taper. (I love a prednisone taper. So do my knees) still no feeling in the arm. MRI shows morensbojt that disk stuff at c5, but it’s not enough for the symptoms I’m having.

What they found was a t2 hyperintensity showing demyelination of the cervical spine. So I’m thinking “oh great. Here we go again.” I get bounced around a few specialists until I finally see this one that was THE BEST. Straight shooter. Told me like it is. Basically, he was like this looks bad bad. We need a brain MRI with contrast. He scared the shit out of me but in like a refreshingly honest way. I donno if that makes since. Anyway, so I get home and I’m googling and apparently there’s a possible link between adalimumab and demyelinating diseases. So I message Rhum, doesn’t seem so concerned, which makes me less concerned and kinda accepting like “this is the deal with auto immune things, you get one you kinda get em all”. But then just now Acreedo, god bless em, f#*$ed something up so I had to call them for my next shipment. While I’m with the pharmacist I get to thinking and I go “Hey, let me ask you about this…” Turns out the recommendation is to discontinue and it’s a known damn thing!

Im so tired of having to be the patient and the detective! It’s so frustrating.

Does anyone have any experience with this they can share? I’m not sure if this thing gave me Transverse Myelitis or MS, if I’m grasping at straws, if this might get better if I discontinue, or if I’m just rationalising this away.

I’m a recent, and unwilling, convert from the PsA community. I’m on a humeria bio similar for my PsA. About a month ago, give or take, I lost feeling in my right arm. Sort of like a dull pins and needles kind of sensation. We thought it was a disk thing, and it could still be as there’s some stuff going on there too, but after I finally got my first MRI done it showed a hypersensitivity in my cervical spine that represents what the spine doc suspects is TM or MS. I have a brain mri next with and without contrast as well as a visit with the MS neurology department.

But with little else to go on, I turn to you fine people.

I feel like I did when I was first diagnosed with PaA… just defeated. I’ve since learned that you adapt and can get by so I’m hoping that stays true. Currently, however, the doctors seem very concerned and I’m just waiting to see more doctors and get tests done.

Lay it on me. What am I in for? What should I expect? Any early tips, stories, or bright spots?

Thanks in advance.