I’ve been struggling more than usual the past few days, and it’s really scaring me. It’s at a level that has only happened one other time, a couple weeks ago.
I’ve been getting “cement leg” i believe it’s called? At least, my leg/legs get heavy, limp and my knees give out. During these episodes, I also do this thing and I’m not sure what it is. I start slowly leaning forward, it’s like the top half of my body wants to crumple into the bottom half. I get so tired that I can’t properly think, talk or get myself out of the position. It’s weird and awful.
I know that’s a lot of background information but it’s all just so scary. I’m not an adult yet (17), and I’m struggling to walk. I don’t know how I’m going to make it through this last month of school if this continues, because i can’t seem to overcome it quickly, i just have to lay down and let my body do its thing. All of it really just sucks and I’m so scared. I have so many unexcused absences at school (almost all medical-related) and I’m afraid of truancy or detention or something, I have an almost perfect record and I really really don’t want to mess that up. I’m just exhausted.
u/Legal_Style_8202
▲ 15 r/ehlersdanlos
u/Legal_Style_8202 — 21 days ago
▲ 4 r/ehlersdanlos
I’m having a little bit of trouble now that I bring my cane to school. I ride the school bus and prefer to sit by myself so that it’s easy to situate my cane. When I’m sitting with somebody else, it’s hard to get my bag on and my cane readjusted (it’s the kind with an adjustable height) quickly and comfortably. There’s not usually many fully EMPTY seats, but there’s lots of other people to sit with.
Is it wrong of me to ask people not to sit with me? If not, how do I do it?? I feel like I need to explain that it’s because of my cane instead of just saying “no, i’m sorry!” but that might just be because i’m a people-pleaser and really don’t want anybody to think i’m rude.
u/Legal_Style_8202 — 25 days ago