r/BeatCancer

My 1 year post chemotherapy update is here https://www.reddit.com/r/BeatCancer/s/74JeOTegsN

My NED lasted for 16 months but that CT scan showed 5 mets.

Now it turns out I wasn’t truly NED.

Look at my CA 19-9 numbers above. During 2025 when I was off chemo they stayed low but abnormal. I looked into causes but no signs of cancer so it just was.

Late in 2025 I became more confident and altered my diet by adding white rice which is high glycemic. I also was digging into my fatigue and a doctor suggested I pause taking Curcumin as I might be allergic. The combination took the breaks off and slammed the gas. The cancer started to grow.

By April it was clear. I immediately went full bore back on a metabolic protocol and sought opinions. I had a PET scan and MRI. Last week I had SBRT treatment of all 5 mets. I am waiting on blood tests. I will have a CT scan in a month.

Oh everyone. I forgot to upload this, here is my tumor. What I was dealing with was a High grade pleomorphic Rhabdomyosarcoma. Over the course of being diagnosed in Jan to surgery in June I did my best to stick to Keto (relapsed multiple times later), physical fitness, prayer. Ivermectin, Fenbendazole, Mebendazole and radiation. The tumor shrank quite a lot and now I am in the process of recovering! Everyone, keep fighting!