r/EpilepsyFriends

Hi all,

I’ve been living with epilepsy for a few years, and one thing I’ve noticed is how many everyday environments aren’t really designed with neurological sensitivities in mind. I’ve also found myself becoming more sensitive to certain stimuli over time, even though my condition is currently well-controlled with medication.

Because of that, I’ve been thinking a lot about how isolating this experience can be for people.

I have a tech background, so I’m curious to know what challenges or unmet needs have you noticed in your own experience living with epilepsy?
This could be anything: apps, tools, accessibility gaps, or even content like blogs/videos that you wish existed.

I'm in my 20s about to start my job in few days and honestly I don't know what to do. I have been walking to keep physical activity, yesterday I walked a little too much and also had a pizza ( just some normal things which I always do). I completed my mba which is pretty hectic with odd hours of sleep and stress. My observed cause for this is stress mainly. But today I didn't take any stress. I noticed when I stop drinking milk i have it and when I start again I have it. I did drink a few months ago(it was my 2nd time) because I was done stopping things I love(cycling, driving, swimming, not staying near a fire, and gym(i still badly want to go to gym)).I take brevipil 75 and guess what I didn't miss my medication either. I have been watching TV for 2 days (people say electronics cause this) but I still am trying to fix my Sleep schedule but it's tough. Honestly I'm done I don't know how to continue and how I will continue with my life ahead because adulting is tough. Also I had gone through some trauma (friendship breakups) so I have some anxiety like I get anxious and stress a little fast. Also my parents and extended family are tough to deal with. The constant disturbance and fights and all just.. I don't know I like it on my own because it's peaceful. Honestly I just need someone who is as understanding as me. I have always been understanding towards all my friends and yet I don't want to share this with anyone because they don't know how it feels and they might think I'm weak so I don't want to lose friends over this. I always get it during sleep at midnights but last year it happened during day time because of the stress improper diet. I thought it was the end of my little independence that I have but yet I continued. Last year I was in a hostel (i always wanted a hostel life because life around people outside my home feels fun and less stressful. My one parent keeps on telling medications on not needed but I don't listen coz I can't take any more risk although I want to stop it but I won't.

Also I feel like nobody will marry me. Idk what to do Sorry for a random rant but I would love this community's inputs.

I am new to having seizures I am 40 and I have had 6 seizures and about 5 weeks I don't no when they are going to happen either I have soamy question can any one please help.