r/HLHS

▲ 10 r/HLHS+2 crossposts

Insecure about body

Hey all,

Im a male in mid 20s, born with HLHS. I was always insecure about my body because I was never able to gain weight. I feel underweight and skinny.

My weight never crossed 125lbs. I try to eat but get full very quick. Ive been working out for a year and just barely started getting some muscle mass on my biceps.

Anyone with CHD feels the same and how can I make my muscle mass increase?

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u/416ca — 7 days ago
▲ 7 r/HLHS+1 crossposts

Anyone with CHD also have a SO with CHD?

Just wondering how it worked out? I have HLHS and was thinking about this.

Any restrictions in your daily life or risks in having children?

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u/416ca — 9 days ago
▲ 13 r/HLHS+1 crossposts

How did you talk to your kid about an upcoming heart surgery?

I have a 3.5 year old with HLHS, and she is having her Fontan surgery at the end of the month.

We are flying across the country for the surgery - same hospital she had her first two surgeries and she has follow ups there. Our families live in that city, so it's always fun for her to see her cousins, aunts and uncles.

She knows we are going on a trip, and I've lightly mentioned it once (doctors are going to fix her heart so she can run faster). But I really don't know where to start to talk to her about this. She's a smart kid, she remembers everything that everyone says (we have to watch what we say, in that phase!) She'll put things together.

I just don't know when and what to say, how much to say. I want her to feel brave and confident.

Help!

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u/technopagan_ — 10 days ago