r/HNPPsupport

Any advice helps, thank you.

Long story shorts both of my pinkies started feeling numb back in February. Four months later, half of both hands (pinky side) are numb and I’m feeling a lot of weakness in my grip.

it took me about two months after the initial symptoms to actually get into EMG study and they suspect NHPP. still waiting for a neurology consult that I have next month. I actually don’t really know what’s being irritated so I’m kind of just winging it.

Any advice you wish somebody told you when you first started off with this? thanks

I used to play guitar a lot a few years ago. I’ve been trying to get back into it for the past year but the tips of my fretting fingers quickly go numb now and take weeks of no playing to get sensation back. I need good finger sensation for my job so I’m weary if I should continue or not.

Pretty frustrating, has anyone had similar situations and figured anything out besides only playing max 5 min a day?