u/-archmaester

Has anyone been refused myomectomy due to weight?

Particularly in the UK (NHS)?

I'm fat. I have been trying to lose weight for several years. I eat cleanly and have never been a big eater but I am very obese.

My doctor has suddenly told me that I will not be able to have surgery if I have not lost 18kg/40lbs in 4 Months time.

I have already lost 16kg since my Fibroid diagnosis. I've tried glp1s and I am a slow responder. I'm continuing on my weight loss journey but it's slow. 40lbs in 4 months seems to be an impossible goal to reach. I understand that being larger carries risk but all of my blood are fine (and have always been fine) and I am losing weight but just not at that rate. My largest Fibroid grew 4cm in a year. It's now 17cm and I am in agony.

Is this a typical thing to set a surgical weight limit at 100kg or am I facing discrimination?

This was my first time meeting this doctor. All of my appointments have given me a different Gynaecologists and this is the first doctor who has not acknowledged my progress and been obsessed with weight. He was very nasty about it.

I will of course continue to try and lose weight but I have already been waiting 18months for surgery if in 4 months time they tell me that I cannot have the surgery then I do not know what I will do. This delay is also having a knock on affect on other health problems that cannot be addressed until after my myomectomy.

I am specifically looking for people who have taken GNRH antagonists for 3 or more months. I would like to find out how this affected your AMH or AFC if your levels bounced back after you stopped taking it and how long that took.

My Dr is pressuring me to take linzagolix (other GnRH antagonists are unsuitable) to shrink Fibroids prior to surgery and whilst I understand that fertility tends to bounce back after taking gnrh a, I have been unable to find any studies that specifically look at those with Diminished Ovarian Reserves and whether they respond as well as those without. My AMH is declining rapidly and AFC is low. I cannot afford for my ovaries to not recover.

I can't freeze my eggs beforehand as the fibroids are blocking access to my ovaries. I understand the risk of not taking it but I there seems to be little information on the risk to my fertility of taking it.

If anyone with DOR has taken a GNRH antagonists for 3 or more months can you please inform me of how this affected your AMH or AFC levels?

I am not looking for accounts from those who only took it for a short amount of time.