u/-stanhalen

If so please tell me your experience. Send a PM if you wish.

34F. I got my Cardiac MRI done on Thursday, I don’t talk to the cardiologist until Monday.
However, my results are in my chart. LVEF 53% and RVEF 58%. In the middle of July I was at 25%. In Feb when diagnosed I was at 20%. I went into this MRI praying for at least 30% and then I seen that. My heart is still severely enlarged, and septal hypokinesis/dyssynchrony was noted. But I’m gonna take the win with the ejection fraction and just hope my cardiologist says the same thing on Monday 🤞🤞🤞
Has anyone else had septal hypokinesis/dyssynchrony noted?
If your heart was enlarged and your EF improved, did it remodel at all?

So since the end of July I have gained 14 pounds. My doctor wants me to take lasix but it makes me feel so horrible. It triggers tachycardia and I feel weak and crampy. And dizzy.
The thing is, I feel great. The best I’ve felt since diagnosis. But I’ve taken the lasix twice during this time and just felt terrible. I’ve walked 12 miles in the last 5 days, I’ve been doing awesome. Has anyone else experienced this and just ended up gaining normal weight?

I try not to have health anxiety but this new thing going around doesn’t help. I looked up how it can affect someone with heart failure, and it would lead to severe dehydration. Which can cause toxicity’s from certain medication, or ineffectiveness from others. Has anyone in here had it, or a similar parasite while also battling heart failure? How are people staying vigilant?

Has anyone bought shoes for them selves in the opposite gender? I really like a pair of Clifton’s for men, but I don’t want to get them if they aren’t going to fit me right even if I know my correct size.

Good morning everyone. I’m a 34F, was 33 when everything happened. So for starters 3 months ago I went to the emergency room for SOB, swelling and pitting, and being unable to breathe while lying flat and just extreme fatigue. I was pregnant so I thought I was just having serous pregnancy symptoms and ignored it for about a month. I finally went to ER and they found an enlarged heart, an ascending aortic aneurysm of 8.1 cm, and heart failure with an EF of 25%. After two days of getting my blood under control after miscarriage and DIC and a few other things, I went in to emergency surgery 2/16/26 for an aortic valve replacement. Now 3 months later at my appointment yesterday, my cardiologist is worried that my heart failure hasn’t improved at all my EF is still 25% and he seemed really concerned. He changed some medication added a new one (jardiance) my insurance has yet to approve and is wanting me to see a specialist in Los Angeles. I went to the ER by ambulance the day before my appointment with him due to chest tightness and being dizzy. My resting bpm was 130 and when ems got there my blood pressure was 160/110. But they just said it was an anxiety attack after running blood test and X-ray. Most days I feel okay. I’ve been exercising daily and trying to eat healthy but sometimes I slip up. Has anyone on here seen improvement in just 3 months?
Edit: after reading through a few posts I have seen people have seen improvement with upping entresto, have been on 24/26 once a day the entire time. He keeps upping my carvedilol from 3.125 to 6.25 and now 12.5

Hello, in February I had an emergency valve replacement for an 8.1cm aortic aneurysm. Today I got a CT scan for hematology due to some provoked DVT remaining from surgery. The CT notes states that my aorta is still dilated at 4.3 to 4.4 cm. The valve was completely removed and replaced so I’m wondering if it is normal for my aorta to still be so dilated? Since this was for hematology should I call my cardiologist?