u/-stanhalen

Cardiologist said nothing is improving

Good morning everyone. I’m a 34F, was 33 when everything happened. So for starters 3 months ago I went to the emergency room for SOB, swelling and pitting, and being unable to breathe while lying flat and just extreme fatigue. I was pregnant so I thought I was just having serous pregnancy symptoms and ignored it for about a month. I finally went to ER and they found an enlarged heart, an ascending aortic aneurysm of 8.1 cm, and heart failure with an EF of 25%. After two days of getting my blood under control after miscarriage and DIC and a few other things, I went in to emergency surgery 2/16/26 for an aortic valve replacement. Now 3 months later at my appointment yesterday, my cardiologist is worried that my heart failure hasn’t improved at all my EF is still 25% and he seemed really concerned. He changed some medication added a new one (jardiance) my insurance has yet to approve and is wanting me to see a specialist in Los Angeles. I went to the ER by ambulance the day before my appointment with him due to chest tightness and being dizzy. My resting bpm was 130 and when ems got there my blood pressure was 160/110. But they just said it was an anxiety attack after running blood test and X-ray. Most days I feel okay. I’ve been exercising daily and trying to eat healthy but sometimes I slip up. Has anyone on here seen improvement in just 3 months?
Edit: after reading through a few posts I have seen people have seen improvement with upping entresto, have been on 24/26 once a day the entire time. He keeps upping my carvedilol from 3.125 to 6.25 and now 12.5

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u/-stanhalen — 5 days ago

Hello, in February I had an emergency valve replacement for an 8.1cm aortic aneurysm. Today I got a CT scan for hematology due to some provoked DVT remaining from surgery. The CT notes states that my aorta is still dilated at 4.3 to 4.4 cm. The valve was completely removed and replaced so I’m wondering if it is normal for my aorta to still be so dilated? Since this was for hematology should I call my cardiologist?

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u/-stanhalen — 27 days ago