u/406clown

56 YOM otherwise healthy and run 5 days a week. Boost results are in 4 of 12 cores came back positive for cancer. Right apex came back 3+4=7 intermediate and the other 2 were right mid gland 3+3=6 Gleason.
The only treatment in my area is removal or radiation. The urologist is recommending the Fred Hutch center in Seattle and thinks I’m a candidate for HIFU, there is a place in Spokane which is closer but does less HIFU procedures.
I think I’m in for a battle with insurance about HIFU because it’s not considered standard of care yet, so they might classify it as experimental and not pay. They’ve assigned a case manager, so waiting to talk to them next week. I have to wait 4 weeks to see my urologist to talk treatment options officially but I’ve already called the place in Seattle.
Would love folks thought and experiences around HIFU and if your insurance covered it as well as anything else folks can share.
Radiation and removal scare me, I’ve got a hig stress job and little kids so I can’t be out or limited work wise for long. Not to mention that ED and urinary issues related to both radiation and removal scare the heck out of me.

Well today is day 2 of waiting for biopsy results. 55 yom PI-Rads 4 on MRI apex lesion .8 cm prostate is 39 cm capsule intact. Had fluctuations in PSA though steady rising but testosterone was off the charts which is why we did the MRI.
Waiting for the biopsy results and trying to run every possible treatment option available. In my area, very rural western US, I will need to travel for anything that isn’t radiation or removal.
No real questions at this point just hate the waiting game. Should have results by Friday but the treatment option conversation isn’t until the end of June, so 4 weeks of waiting post results too.