Waiting on SCA1 results…
After my uncle, dad and older sister all found out they have SCA1, i’ve decided to take the test (F25). I just found out about my dad and sister’s diagnosis, and the fact that there is a possibility that I could have it. To be honest, i’m scared shitless - 50/50 doesn’t feel like great odds to me. My boyfriend keeps trying to remind me of the gambler’s fallacy - two sisters, one already diagnosed - but I know it’s called a fallacy for a reason. I watched my grandpa deteriorate until he passed in 2021, and it was hard to be around. I don’t want to be disabled for my whole life. I want to have kids and a family. My job is physically demanding and I love it and I don’t want to have to give it up. I haven’t been able to stop dooming and glooming about it and I won’t get results for probably another month. Any advice on how to kill the time? Any moves I should be making in the meantime? Research/lifestyle changes/doctor’s visits??