u/777CuriousMind

▲ 20 r/BRCA+1 crossposts

Photodocumentation of Experience

I frequently read the breast cancer, hysterectomy, and BRCA subreddits and I have noticed something. When women get a hysterectomy, they often post a picture of themselves in the hospital bed (sometimes with a thumbs up or just looking cute or happy post surgery). It doesn’t seem to be part of mastectomy culture, but definitely seems to be part of hysterectomy culture to photodocument. Have you noticed this too? Thoughts?

Update: I just want to thank everyone for helping me process this. What started as a semi innocent post is turning into a lot of self reflection on my cancer journey.

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u/777CuriousMind — 4 days ago
▲ 18 r/chiari

Does anyone else not really have much headache pain but have other debilitating symptoms like dizziness, vertigo, blurry vision, nystagmus, tingling & numbness, tinnitus, etc.? I have heard that some neurosurgeons will not do surgery unless you have bad headaches, but my neurosurgeon thinks surgery is justified for these other symptoms. For reference my herniation is about 30 mm, but the CINE MRI did not show a lot of obstruction in CSF flow. My symptoms got much worse after getting long Covid and also a gnarly upper neck injury. Everything gets worse with changes in barometric pressure, when bending my neck, and when lying down.

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u/777CuriousMind — 21 days ago