Follow up of my diagnosis and treatment plan
Update to my post from a while back. My diagnosis has been confirmed as of June 2026, with progression of skin thickening on my face (forehead and cheeks,) and fingers, as well as kidney involvement (ckd) and abnormal PFT results (I will be repeating the test in August but first PFT showed an “unusual”, potentially restrictive pattern. Can provide test details!) Part of me thought I would be told I wouldn’t yet fully meet diagnostic criteria but based on the persistent anti-SCL 70 results, clinical signs, and organ involvement, I do. I just so happen to be a part of the less than 10% of scleroderma diagnoses that occur without a positive ANA. Rheumatologist said this is rare but not impossible.
I am starting Plaquenil this week. Pretty nervous about possible vision impairment but hoping for the best. Thank you all for your support and helpful comments on my original post! Planning to talk to my primary care doctor about low dose GLP1 and low dose naltrexone. If you all have any insights or advice, I’m open to anything! Sending love to this community. (You know it’s bad when your doctor tells you to join a support group!!)