u/Accomplished-Cry-110

My dad is 70 years old and received a kidney transplant 26 years ago. The transplant has worked incredibly well all these years and we are so, so grateful for that.

A couple of weeks ago though, he started feeling unusually lethargic, had a poor appetite, complained of acidity and noticed a reduction in urine output. His transplant team evaluated him and told us his transplanted kidney had started rejecting. He has since received high dose steroid treatment and we are now waiting for his follow-up blood tests to see whether his kidney function has improved. We have also been told that a second transplant is unlikely to be an option due to his age and the doctors think his body won’t be able to take it.

As his daughter, I’m finding this incredibly difficult because I can’t stop feeling like I’m going to lose him soon.

I’m hoping to hear from people who have experienced rejection many years after a kidney transplant or from those who have cared for a loved one in a similar situation. I would really like to know how quickly kidney function declined in your experience. Did the rejection respond to treatment? Did your loved one continue to live with the transplant for years after a rejection episode or did things progress more quickly?

I know every case is different and that no one can predict my dad’s outcome. I’m not looking for certainty, just hoping to hear real experiences from people who have been through something similar.

My dad is 70 years old and received a kidney transplant 26 years ago after kidney failure caused by ADPKD. The transplant has worked incredibly well all these years and we are so, so grateful for that.

A couple of weeks ago though, he started feeling unusually lethargic, had a poor appetite, complained of acidity and noticed a reduction in urine output. His transplant team evaluated him and told us his transplanted kidney had started rejecting. He has since received high dose steroid treatment and we are now waiting for his follow-up blood tests to see whether his kidney function has improved. We have also been told that a second transplant is unlikely to be an option due to his age.

As his daughter, I’m finding this incredibly difficult because I also have ADPKD so this is hitting me on multiple levels. Watching my dad go through this is heartbreaking and I can’t stop feeling like I’m going to lose him soon.

I’m hoping to hear from anyone who has experienced rejection many years after a kidney transplant or from those who have cared for a loved one in a similar situation.

I would really like to know how quickly kidney function declined in your experience. Did the rejection respond to treatment? Did your loved one continue to live with the transplant for years after a rejection episode or did things progress more quickly?

I know every case is different and that no one can predict my dad’s outcome. I’m not looking for certainty, just hoping to hear real experiences from people who have been through something similar.

My dad is 70 years old and received a kidney transplant 26 years ago. The transplant has worked incredibly well all these years and we are so so grateful for that. A couple of weeks ago though, he started feeling unusually lethargic, had a poor appetite, complained of acidity and noticed a reduction in urine output. His transplant team evaluated him and told us his transplanted kidney had started rejecting. He has since received high dose steroid treatment and we are waiting for his follow-up blood tests to see if his kidney function has improved. We have been told that a second transplant won’t be possible due to his age.

As his daughter, I’m finding this incredibly difficult because I feel like I am going to lose him soon.
I am hoping to hear from people who had a transplant that have gone through this
or cared for a loved one in a similar situation.
I basically want to know how quickly did kidney function decline and did your loved one continue to live with the transplant for years after a rejection episode?

I know every case is different and no one can predict my dad’s outcome. I’m not looking for certainty just hoping to hear real experiences from people who have been through something similar.