How are ya'll holding up? Seriously....
I am 29F, Dx last year with non-radiographic axspa but have been in pain for 2 years. SI joints are awfully painful of course, but its also spread throughout my whole body. I am so exhausted of all the doctors, medications, etc. I am in school full time and work part time. I used to be such a good student and employee, but I find myself constantly making mistakes. I just feel like my mind is all over the place, I have no motivation, and cannot focus even though I take Adderall. I have really been trying to stuff it down because no one wants to always hear about it, so I just keep my pain to myself. My husband tries to understand but he does not like that I sleep so much, but I am so exhausted and truthfully I don't like it either. I think other people think I should be able to do things like a fully able-bodied person because I am able to somewhat function on like 5 medications, but I hide it a lot. Its so lonely, because for other people, their lives move on while mine feels stuck in this nightmare. I think I am starting to hit a wall and I just wanted to know if this sounds normal for others given this disease, or am I just unable to handle it while others are.
Please let me know your experience.