How much do you feel you have improved the last
3 , 4 or 5 (+ plus); years
Basically from 0 to 10
0 lowest
10 highest.
and, for those that improved more than 50 percent.
Was it time, treatment or
other
I guess a lot of us can t function as we used to but we are still here, we are survivors. We exist, we count as part of the human race.
But this isn't the way people treat us, we are treated as if we did this to ourselves, and somehow deserve this.
I've never asked for sympathy, but understanding.
Just as any other person with an issue/ situation has.
I've never asked for be treated special but to be treated fair.
Why is it so hard. ..
after 4 years and about 8 months. This is my conclusion. It may be different for others,.and I'm
speaking for myself only here. It might be different for
others. Too many factors.
But too.many coincidences as well that tell me that this is a.disease of the CNS/
PNS.
I dunno maybe my knowing what's coming at me I'll have a better way to understand how to deal with it.
I.made the mistake of seeing a life with some better meaning, spenjngit with someone and not being
lonely...
I guess it false hope.
I dunno..
only time will tell but it's already 4 years and 7 months.
anyone else in the same boat ?
its an irrational fear that your health may lead to dementia
or other illnesses, that may make your life harder, also you might meet someone or a relationship, that you can't
handle, as well as many things you have already lost.
basically feels like someone punched your gut.
Has anyone showed improvement over time
It's been over 4 years for me
last Feb.
The loneliness can be over wealming, no I'm not talking about you living alone, I'm.talking about going through this by yourself,.as you can be surrounded by many, and still feel isolated, for some isolation may be ideal, but for most
that has a social life before all this,
the long term effects can be debilitating, depressing, and frustrating, as this is an invisible illness, many people find themselves helpless, and decisions may be hard, WAITING can be hard,
moving around, trying to connect with the right people, and fight not only this illness but the fear of living.
To prevent crashes, and stay at baseline, we need to avoid stress,
bad people, and certain situations.
Have u felt stepped on, and un able to fight back, having to move out and relocate, avoid people and places and anything that is not good for you. How do u cope with this on a daily, and sometimes, we can't help but feel like the kid that gets sand kicked in his face. What do you do?..
sometimes, I forget to remind myself I wasnt like this before