u/AgentExtension1968

!! Not an EVD, LITERALLY A VA/VP EXPOSED TO THE AIR. !!

i posted about this same day but a different issue yesterday ish. but basically when i was 11 ( 2 months post op) i went on vacation to Disney world and there was this NOT ACCESSIBLE wave pool and my 11 year old dumb ass walked into it and got knocked to the pool floor and hit my head and choked on water blah blah blah

we went back to the hotel i was looking in the mirror and i vividly remember going “ MOM my shunt scar finally fell off” oh boy was i an idiot.

like a month later im laying down at a doctors appointment and my mother was playing with my hair and sees my shunt…. like LITERALLY MY METAL AND PLASTIC SHUNT.

it was exposed to the air for a whole ass month and my neurosurgeon rid my dick ( metaphorically obviously) and told me that i must clean my head really well because i had no infection like at all

basically my point is, anyone else have an exposed shunt haha?

i cant believe im posting this on the internet but i need to know if im the only one

backstory: i have MM and have cathed every 3 hours ( while awake) for my whole life and had a mitrofanoff from age 5 -11.

basically at 11yrs my mitrofanoff got a kink in it so my urodynamics lady put a foley in it to try and open it back up. (unrelated to the question but horrible timing) my mother was by my head and playing with my hair or whatever and saw MY SHUNT. hours later after being in the ER my mom was like “ you gotta go cath” so i tried and nothing came out.

i take my pants off and THE OTHER END OF THE FOLEY( the side with the balloon on it) WAS STICKING OUTSIDE OF MY URETHRA.

most embarrassing thing i at 11 years old have ever experienced

i just wanna know if this has ever happened to anyone because at the hospital i go to at the time this had happened IT WAS UNHEARD OF which definitely added to the embarrassment

does anybody else because im the most depressed ,sensitive, and overstimulated person on the planet when im on it

for context i go on it a week before i have surgery ( unrelated issue to epilepsy) and get off of it a week after because gabapentin does have Iv form.