Severe Dysplasia
Hello,
I had HPV negative SCC of the tongue 12 years ago when I was 25. Not related to smoking or alcohol. Had a partial glosectomy and 39 nodes removed as well as a salivary gland. Luckily it was T1N0M0. Have been ok since. In January of this year I had my first biopsy since. It came back positive for moderate dysplasia. They said I could either have surgery or go for watchful waiting considering it might require more surgery which could impact me due to removing more of my tongue. I went in again this week because I have had persistent pain in the area that hadn't gone away. This time it came back positive for severe dysplasia.
I go in on Friday. Has anyone else dealt with this? I have been cancer free for 12 years. I don't want it to turn into cancer again but I am very aware that removing mutating tissue doesn't necessarily prevent cancer from recurring at all. Mine is in the same place.
I usually post on the Oral Cancer Support Forum but it seems less active than it was 12 years ago when I dealt with this the first time. Trying to find other places to ask this. Any advice is much appreciated.