u/Alternative_Top_1288

I’ve been thinking a lot about how difficult it can be to communicate during pre-syncope/fainting episodes.

For me personally, I often still have a few seconds where I know I’m about to go down, but speaking/using my phone quickly becomes difficult.

One of the things I struggle with most is:

• worrying nobody knows what’s happening
• being alone during episodes
• trying to alert someone before symptoms escalate

I’m really curious whether others experience similar issues or whether people have found anything that genuinely helps with this?

Do you:

• text/call someone before symptoms worsen?
• use any wearables/apps?
• struggle to use your phone during episodes?
• worry about being alone when symptoms hit?

Would love to hear real experiences because I feel like current options don’t really fit people with POTS/VVS/dysautonomia.

https://forms.office.com/pages/responsepage.aspx?id=DQSIkWdsW0yxEjajBLZtrQAAAAAAAAAAAAMAALaihNFUNjhXSFVPSDRLT0FRVlE0WE1BT05KSTJPUi4u&fbclid=IwdGRjcARzIhFjbGNrBHMiDGV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHr-uQfCOMAv9JJ13CHQN6QkeNt0in85l9NxIcWUaoxCzHHiBgCVluXc7exsR_aem_lWqAERWs74teL9VWclQmEg&route=shorturl