Ewing sarcoma
Hi, I’m a 31 yr old female. I got told I have Ewing sarcoma about 3-4 months ago. I had a HUGE tumor on my kidney and 2 spots on my adrenal gland. I had my kidney and adrenal gland removed May 6th. I had a spot on my lung before my surgery and stuff. But the spot is still there and grew just slightly. It did light up on the PET scan but nowhere else did. My margins were clean when they did the surgery also. My lung spot is 8mm. I went to sarcoma specialist and he wants me to start chemo (IE/VDC) this coming Thursday. Every 2 weeks, 14 sessions. I have to stay at the hospital minimum of 3 days up to 5 each time I get the chemo. I am BEYOND terrified of the symptoms I’ll have/get and if this cancer will ever go away. Mine is extraskeletal, so not in bones. I’m also getting a port put in and nervous about that too bc I’ve had 2 blood clots(provoked) after childbirth and I heard ports can cause clots.. I need some support with all this.