Surgery is scheduled! Feeling confused
I was seen by my PCP in late February, who put in my referral to a MIGS/pelvic pain/endo specialist, and I had my first appointment with him yesterday. I would say the appointment went great. He listened to my concerns, went over my symptoms, gave me some suggestions about supplements and dietary changes to help symptoms, prescribed a vaginal suppository muscle relaxer, and did a pelvic exam. He gave me lots of options of how to move forward such as birth control or hormonal suppression(declined because I am wanting to get pregnant), I’m already in pelvic floor therapy so he was happy to hear that, and gave me the option of diagnostic surgery with excision of endo is found. My life is completely damaged by these symptoms I’m having to where I am unable to work, grocery shop, walk or stand for more than 15 minutes at a time, etc. so we scheduled surgery for late September. I thought this would make me feel better, hopeful, like an end is near and I might get my life back. But now I’m feeling almost worst mentally, like if they don’t find anything then what?
I have lots of classic symptoms of endo such as bowel/rectal issues, bladder issues, back/hip/pelvic pain, unbearable periods, bloating, fatigue etc.
I guess I’m just worried. I had a lap for a ectopic pregnancy/single tube removal last June and nothing notable was seen, but he did say that the surgeon who did that lap wasn’t looking for endo and it could’ve easily been missed. I also went off birth control right after that lap, which is when my symptoms came up full force. Before that I had been on birth control since I was 14 or 15, and I’m almost 28 now. I’ve also had a few pelvic CTs/ultrasounds done last year due to all this pain I’ve been having, and nothing notable was seen except some ruptured cysts, and corpus luteum cysts, which has risen any concern. I know it’s common for endo to not show up on imaging, I guess I’m just gaslighting myself that this is going to be a waste of time and post surgery I will feel even more discouraged. Anyone else feeling like this? How often does it seem that endo is found even when not on imaging but all the classic symptoms are there?