u/Anxious_Window_9863

Advanced debility and possible feeding tube

My husband's care team visited today to check on pressure wounds, and also give an overall exam. We don't have a diagnosis, partly due to his very quick decline.

After telling a nurse on the team earlier this week that he's lost even more weight, I believe, and that he's refused all solid food for 3 days, they discussed options. A social worker came and spoke with me privately to say the doctor and nurse practitioner felt it was time to discuss a feeding tube. He's very weak, he doesn't seem to realize how much he's declined. He had told them when beginning with PACE last month that he didn't want a feeding tube.

They are giving him a few days to decide if he'd change his mind and want the procedure after all. I have read a bit, but I really don't know much about the pros/cons of a feeding tube in a person who maybe be at late stage Parkinson's. Anyone who could share your thoughts would be appreciated.

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u/Anxious_Window_9863 — 1 day ago

When the caregiver needs a caregiver

I've posted a few times and am new to fulltime caregiving for my husband (m64) whose health seem to continue declining.

My question today is regarding my health, too. I (f70) had my annual mammogram two weeks ago. I've not had many problem for years. A couple times I've needed a 2nd mammogram that they want to look closer at an area. But this time, I was almost immediately set up for the 2nd mammogram. Then I received a call that I needed a biopsy. I had that on Thursday and should receive results by Monday or Tues.

I'm hoping the biopsy is negative, of course, but thinking ahead I'm wondering if I need treatment for breast cancer, if I need surgery or more, I'm not sure how I'll be able to continue caring for my husband temporarily.

He's in the PACE program. I suppose that IF I receive news that I need treatment, my first call could be to the social worker there. To see what ideas and options they have. Maybe he could stay home as he'd prefer if we had extra help. If you've been in this type of situation, could you give advice on how to go about taking care of yourself and also your loved one? Thank you for any input.

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u/Anxious_Window_9863 — 5 days ago