u/Any-Investment-7872

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Hi my Duluth friends! I created a group on Facebook for Duluth and surrounding areas for people and caregivers of chronic illness and disabilities to come together and create a community to support each other and network! As someone who is a lifelong resident of Duluth, becoming disabled with a chronic illness has been debilitating and isolating. I know I’m not the only one. ☝️ please share and invite others so we can be a strong community and group!!

TLDR: Lower limb pain for over a decade. Unsure what could be the cause, asking for people’s experience. Comorbid with Mecfs maybe?

I am legit 22 years old and since I was 5 I’ve had episodes of severe pain from my hips down to my toes. Heat and ibuprofen helps but it feels like someone is crushing my lower limbs and compressing them at the same time. My autoimmune tests come back normal. I don’t have a lot of other pain in my body really besides my neck. I am not diagnosed with fibro or hsd or any other condition that has to do with this type of pain. Since being bedbound it’s a lot worse. My doctor has ignored this every time I bring it up. The episodes come randomly but I have noticed that after weather changes I can expect to have leg pain the day after. Anyone have any ideas?