u/Any-nonny-mouse

Do you care if your clothes cover your port?

I love my port! But I'm not sure other people want to see the scar or wire in my neck.

Summer brings more revealing clothing, and I'm wondering how to handle this. Because of overzealous air conditioning, I often wear a scarf at work, which solves the problem of covering up.

What you all do with your ports? Do you care if people see?

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u/Any-nonny-mouse — 1 day ago

Tagged as "venting" because this isn't a problem I want to solve. It's an observation. And wondering if this resonates with anyone else?

Sometimes, the treatment you expect to be hard is actually easy. Or what you expect to be easy is surprisingly hard.

My first treatment was chemo: THP. Everyone assumed it was terrible, because chemo has that reputation and my hair fell out. But for me, it was easy. I had very few side effects. And chemo cured my months-long bone pain (still gone) which helped me feel better.

Then I moved onto pills and shots. Adding an AI and CDK inhibitor has been really difficult. So many side effects! We're switching meds and lowering doses so maybe it won't feel this way all the time. But I was getting a lot of sympathy when I didn't need it, and now that I'm struggling it seems like no one really understands. Including myself! because I expect the pills to be easier than an infusion.

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u/Any-nonny-mouse — 21 days ago