u/Appropriate-Fill-174

Saving up for a new outfit!

Saving up for a new outfit!

User: Zaubersocke

Donate if you want:)
Also looking for people to play games with (just send a friend request or dm me here. Idm which game.)

u/Appropriate-Fill-174 — 9 days ago
▲ 10 r/FSHD

How to cope with this illness?

Hey everyone :)

I wanted to ask how you all cope with this.
Lately, I just feel drained and empty every day. I can feel and see my body getting weaker, and it’s hard not to think about what the future might look like. Deep down, I know things will probably get worse before they ever get better, if they do at all.
What scares me the most is the thought of becoming completely bed-bound one day. I try to focus on the small things and appreciate what I still have, but honestly, some days it feels impossible.
I’m only 18, and I already struggle with basic everyday tasks and finding a job. It’s heartbreaking knowing there are so many things I’ll probably never be able to do… Traveling, running through the sand, climbing a mountain, riding a horse, or just experiencing life the way other people my age can. Even smiling like a normal person would be a huge thing for me.
Seeing others do those things just hurts. It feels like I’m grieving a life I never got the chance to have.
How do you cope with these thoughts? How do you keep going when the future feels somewhat pointless?
Any advice would be appreciated..

reddit.com
u/Appropriate-Fill-174 — 11 days ago