Hii, I was wondering if anyone else had this issue with scarring?
For context I have aEDS so scarring is usually slow but it’s been a year and a half and I still have a very raised keloid scar on my pubis from my laparoscopy, is anyone in the same boat ? Did it go away for anyone ?
This is in no way to self-diagnose or smt, i just want opinion for what to talk about when i see my neurologist
I’ve been having Vestibular migraines with a lot of muscle spasms and feeling very confused, nauseous, and I have trouble speaking when it happens, people who have witnessed these episodes said I don’t really respond (or not in a clear way) when they happen. The symptoms pattern is always the same : somewhere from 30 mins to an hour before the actual episode I get whats I was told were migraine auras, I see black dots everywhere for a couple of seconds, sometimes I smell the sent of vomit for a couple of seconds, I get dizzy and have some small muscle spasms on the left side of my face, on and off and then the “episode starts, I get very tired and I have trouble speaking, I have big muscle spams and the nausea and dizziness persist. Sometimes I am fully aware and responsive during those episodes but recently I’ve a few were apparently I was just not responsive. This last for a couple of minutes and then the muscle spams stops and 30 seconds later I have a very typical migraine headache, I usually feel a bit loopy (as if I was drunk kinda) and slowly thing go back to normal after an hour but I get very very tired.
I havent seen the neurologist yet but my GP prescribed me gabapentin which as reduced significantly the intensity and the frequency of these episodes and I take lorazepam for other reason but seems to make the episode less worse, but think they are just regular vestibular migraines. I haven’t heard anyone with VM having these issues yet, and one time in the er a doctor suggested it might be epilepsy and ordered me an mri that came back normal and closed the case. My internal medicine doc is still sending me to the neurologist just to make sure and I also never had an eeg for some reason.
I’m not so sure what is important to mention when I go see her, and if it’s something anyone here has experienced as well ? I haven’t been able to identify my triggers other than loud noises and bright lights:/
I’m open to suggestions and recommendations, litteraly any help, I don’t want it to be epileptic, I’m praying it’s something else like fnd or just complex migraines 🙏
Oh also this started like last fall, no history of epilepsy in my family as far as I’m aware