u/Astray_Asteriod

Hii!

I had pkd and have been diagnosed with since birth due to complications. Around highschool I started experiencing terrible flank pain & pelvic pain, like unbearable and doctors could really never help with it. In college I started using thc to help with the pain and I was able to regulate it!! But I'm at the point where thc is not an option for me due to jobs I've been applying for and my pain has come back. Does anyone experience pain from this disease or am I just abnormal and potentially attributing it to my disease but could be something else?? Just wanting a different perspective from people that actually have the disease rather than doctors who barely have experience with my disease. Any perspective helps! Thanks <3