Standard Practice?
Hello all!
I just moved to the Denver metro area and am working to establish care here. I was diagnosed with UCTD and seronegative RA early last year. My previous rheum wanted to have me evaluated for HEDS based on documented hypermobility and associated injury, and I was also being evaluated for nutcracker syndrome. Reaching out to a new rheum here, they’re letting me know up front that they do not treat or continue to manage patients if diagnosed with EDS. Is this common practice? Should I find a different rheumatologist?
Given how recent the diagnoses were and how quickly it seems things continue to evolve (new and changing symptoms), I’m feeling a little lost having only ever seen the one rheumatologist before. Would love to hear other experiences as I know it’s super common for autoimmune conditions and EDS to co-morbid :)
ETA - the timeline of my move (which was out of my hands) prevented me from getting timely EDS evaluation, so I have not been diagnosed at this time