I'm wondering if a weekly roundup would be useful...
there's a new review paper in Communications Medicine (Nature, open access) that came out a couple weeks ago. Faghy et al. i'll link at the bottom.
some stuff worth noting:
- it takes viral persistence, microclots, autoimmunity, GPCR autoantibodies, autonomic dysfunction, and PEM seriously.
- treats me/cfs as overlapping the whole way through, not as a separate lesser thing
- explicitly says "long covid" as a term came from us, the patient community, before the institutions caught up
- 400+ million people affected globally, $1T+/year economic cost (and they say those numbers are probably low!!!!!}
it's not a treatment breakthrough or anything, but it's a good one and it's free to read which matters.
my question is..
i've been saving stuff like this anyway (papers, podcasts, news, advocacy things, etc) and i'm thinking about doing a weekly roundup on substack. short summaries, things worth listening to/reading, etc. basically the thing i wish had existed..
before i actually do it though, would that even be useful or is this already covered well by sources you trust? if useful, what would you actually want in it? research, treatment news, advocacy, podcast picks, all of it?
what are you reading/following that i should know about?
just trying to figure out if it's worth doing since I have friends who write on substack and I know its very time consuming