u/Aware_Worry5908

Hey guys!! Just popping in here to ask if anyone has any experience of accessing medical cannabis. I know there is a two treatment rule before you can access medical cannabis but I'm just wondering if anyone knows what kind of "treatment" that includes. Are we counting otc painkillers as a treatment?? Does physio count?? Say for example I have tried methods of pain relief such as codiene and NSAIDS and they did not work for me but all my medical history was lost when I moved gp services, will they take my word for this or is medical documentation necessary?? Just wondering what exactly that rule means and what is included as a type of treatment, because personally I've been told that my GP can do nothing else to support me at this point.

Edit: shouldve mentioned I am UK based !

Hey guys, like the tag suggests, I was diagnosed quite recently, but have known for a while that I have hEDS. I think I'm experiencing a flare up at the moment but I've still got a lot to learn about my condition. I'm just wondering what a flare up feels like to other people??

I've been working very hard both physically and mentally lately and I think it's taking its toll. I'm very very tired and my muscles ache so bad it hurts. I am having just random shooting pains all over my body, I am absolutely wrecked after a shift at work and crying from the pain I'm in. Painkillers don't touch the sides at all. I hurt my lower back just over a week ago and so I've been feeling a lot of that pain in my hip, feeling like things are clicking around in there and making it difficult to walk around and be on my feet. Stomach is playing up more than usual. It feels like all my normal symptoms but amplified by ten right now.

I'm too tired to do anything and I'm in so much pain but I'm tired of feeling cooped up inside, sat around or lay in bed all day. I'm not necessarily looking for advice but it is more than welcome, as is any lived experience anyone might want to share?

Hey, I've recently hurt my back which is causing agony in my hip whilst I'm moving and sat still. I'm looking for low energy recipes that are anti-inflammatory to help my body heal a bit quicker and easier. Being stood up for too long in the kitchen is difficult, so if anyone has any advice, any recipes they can share, that are quick and simple to make I would much appreciate !!!

After lots of back and forth with my doctor who was trying to insist I had to see rhuematology for a diagnosis (they've already rejected me once stating that they do not have a specialist service for EDS patients), we finally landed on a clinical diagnosis and to wait and see if rhuematology can do anything to help (they won't, I can't believe they've even bothered referring me again). But otherwise, it's official, I have received a clinical diagnosis that is now on my record !! War is over !!!

I'm still processing everything, it's nothing new to me, I've suspected this for years and was just looking for that final confirmation, but to finally have an answer to so many of my problems is a lot to process emotionally. I'm very happy to finally feel believed and listened to etc but it comes with a mournful "what if I didn't have these issues". It's like a final 'you will live with this for the rest of your life and have to manage it for the rest of your life' and that's a lot. But like I said I'm happy for the fighting to all be over for now and I can take a little break from the excessive doctors visits and days and waiting on hold. Nothing has wholly changed at the end of the day but it's good to have validation and know I wasn't making it up !!

Here's to working out how to tell my employer (who I don't think is going to be very happy about the news) !!!