Grateful & Tired
It has been 5 years since my diagnosis (25M, Ewingsarcoma in my left femur), which is a very special moment for me. I am very grateful to be here today, its insane what I have gone through.
On the flipside, I am still so-so tired. It has gotten better these past few years, but I still am shocked at how tired I am. Lately I have been feeling like an anchor is attached to my body. First, I was able to read. Now I just can’t anymore. I sleep more, spent more time horizontal.
I have done so much therapy to work on my mental health; starting opening up about my issues, and really started to do things that I want to do with my life. All these things also take up mental space, so that also has an impact on my energy levels.
I also started to do different things for working out. Just lifting weights is too much for me, it takes such a heavy toll on me. So I just walk and do things like Yoga.
After treatment I was treated for PTSD. My nervoussystem was/is dysregulated; hypervigiliance etc. Maybe now that I am calmer I can actually feel how tired I am?
I wanted to ask about how you guys experience this. How tired are you guys? What are you able to do (cognitive and physical)? Shouldn’t I be less tired this far out?
❤️