things were looking good.. until they weren’t
for context: image on the right is from February, middle is from April, and left is the most recent from June. I finished my 27 weeks of radiation + daily temodar chemotherapy on christmas eve of last year (then switched to 5 days each month on temodar again), started and finished my 6 cycles of avastin intravenous - and things were looking good post everything. this month was supposed to be my final cycle of chemo before i went on remission and then be monitored every two months via MRI’s.
until my recent imaging showed up. prior to the imaging i noticed more symptoms like imbalance, clumsiness, sensitivity to light, brain fog, etc. i knew something was up when that started happening again but i decided to not freak myself out before i saw results but yet again, my intuition is always right.
my case was presented to the tumor board again for the first time since my diagnosis (which is really not a good sign since usually that’s for high extremity cases) and i’m freaking out. some doctors suggested it may be radiation necrosis, but others said it may be tumor progression. we were unable to do a biopsy due to the location (brain stem) and now i’m waiting to get more mri’s done the following month.
has anyone gone through this? what’s your advice? help a sister out i’m really going through a rough patch.