Butterfly Glioblastoma
I'm at a loss for words feeling like I can't put a thought together.
It's been four years since I lost my husband twice. The first time was just after we moved our farm across the state during 2020, he left. The second was the morning he passed away after he'd come back home and we discovered in the ER the Butterfly Glioblastoma. That day we got devastating news so many here received also. I'm sorry.🙏
I'm thankful my husband made it home back across the state and that God safely got him over the Mnts time after time. I don't know from his experience what all he experienced in a multi impact on every system in his body but I do know he was a strong man with a strong desire to live and beat the tumor. He came back stronger than ever to his faith and said often "I love you" precious words never forgotten. Our marriage stayed in tact through much prayer along with marriage counseling with Weekend To Remember recommended by a friend pre diagnosis.
There's much psychological and relationship damage that can reach into other relationships based on what's going on with misunderstanding. Through misunderstanding sometimes after they're gone, so is everyone else and the grieving spouse / caretaker is left alone and inside out to try to piece together and make sense out of something that cannot ever be understood.
Thinking back when and where did it all start in regards to symptoms
Some intermittent short lasting symptoms based on the tumor location that over time became more pronounced: difficulties swallowing, racing heart, agitation, confusion, forgetting, 'swallowing' dreams waking in choking panic, swollen lower leg, apathy, anger, sensory overload, odd behavior, child like voice, slurring, weakness on one side, balance, headache, misunderstanding comments....along with many other nuanced symptoms
My husband was a kind and brilliant man who's strength, love and love for God and for people and animals along with his servant style leadership left a lot of light in the lives of others. My best friend... ❤️🦙🐎🐕🕊️We miss you honey.