u/Beetlelovesursa

Image 1 — hi, and advice on feeling crazy?
Image 2 — hi, and advice on feeling crazy?
Image 3 — hi, and advice on feeling crazy?
▲ 3 r/Endo

hi, and advice on feeling crazy?

hi community! happy to be here, and thankful for all the helpful posts.

I’m scheduled to have a hysterectomy 9/18. I’m 42, and have had horrible periods for as long as I can remember. Classic tale of countless doctors visits, birth control being shoved at me, being told just to get through it, and only in the last 7 years have I decided, NO - this is not normal, and I need to fight to be heard. I’ve found good doctors, and have had 3 pelvic MRIs in the last 4 years - they all show slightly different thickening, but all show a medium-large growing fibroid and small edometrioma on ovary.

I can’t take any hormonal drug because I also have a history and had to have a double mastectomy last fall for early stage bilateral breast cancer. It’s been a real doozy. The upside of that is it’s made me a lot less scared about the hysterectomy!

I’m writing while having one of my worst ever endo flares. The pain is excruciating, down my back and right leg, and I almost can’t walk. I mean, I can’t walk without a limp. This is the worst it’s ever been and since I’m due for my period in 3 days, I can only assume it’s related.

I’m SO paranoid that after surgery they’ll say, we didn’t find anything! I’ve read enough to know I’m not alone in my worry. Does this happen from years of being gaslit, and told essentially it’s all in my head and to suck it up? What if it IS in my head!?

Does this MRI prove that it’s most likely not?

thanks for reading this far if you made it!

u/Beetlelovesursa — 26 days ago