u/Believing_TheUnreal7

▲ 2 r/Endo

Hysterectomy

I saw my endo specialist today and I guess the time has come for a Hysterectomy. I have really bad stage 4 die endo and my doctor says its super aggressive, I also have adeno. I had a 10hr excision surgery with bowel resection and urinary tract involvement done 3 years ago (almost). And now we are worried my endo is back. I've been on norethindrone for so long and I guess it's just not enough to suppress my "raiging" estrogen levels. Im 34f, I knew my situation was a bad one, when I did egg retrieval, they only got 3 and out of those 3 only 1 was good. I know my chances of having a child were pretty slim. I thought I was coming to terms with it. Now I just feel extremely sad and filled with grief because now I know it will be a for sure thing.

Anyways.... I need to know if you all felt better after a total hysterectomy ? What should I expect? I'm scared, sad, feel guilty and am grieving.

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u/Believing_TheUnreal7 — 5 days ago
▲ 3 r/Endo

Rash?

Has anyone here also had hives randomly pop up? I started getting whole body hives when I got covid for the first time and then every time I have covid I usually get the hives. This time no covid and I got hives that are worse than they have ever been. I saw a doctor and he says something is up with my immune system. Anyways.... don't know if it's related, to endo, just wondering if anyone else has this issue?

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u/Believing_TheUnreal7 — 27 days ago