Everything lines up minus “burning” pain (but it’s extremely uncomfortable and hot)
I apologize in advance for a lot of detail, and being a bit all over the place.
I have all the symptoms EXCEPT burning. I would describe it as heat, many people have asked if I’m sunburned or think I’m sick when they feel how hot I am. It’s extremely uncomfortable to the extent that at times I have a hard time sleeping, and I feel miserable and it keeps me from doing some things.
The classic triggers are there. The common body parts are the ones affected (face, ears, hands, feet), and they’re bilateral.
I’ve been experiencing this since I was a child. My grandmother had “circulatory” issues I’m told, but I’m not sure what ever happened with that. My aunt too (my grandmother’s daughter). My sister has the same erythromelalgia type symptoms as well, but also diagnosed Sjrogen’s + PCOS. My other sibling has more minor heat issues, but they’re present. She has been diagnosed with celiac disease. I’ve had hypothyroidism since I was a late teen.
I have also suffered with raynaud’s type symptoms as well (my sister too, the one with more severe symptoms like me). It’s like my body is either too hot or too cold, and if it crosses a threshold of either, it takes a lot to get it to neutral. The tinniest things send me into a too hot or too cold phase.
When I found this subreddit, all the photos felt like “coming home”, like YES, these are my people, they get it, these hands look like mine. How I hate wearing anything but sandals, but even sandals are miserable.
However, I just have that one missing component of it not being a “burning” pain.
I have OCD, so maybe I’ve over thinking the technicality of this.
Would love to hear your thoughts. What other conditions would you look into?
Edited to add: I take thyroid replacement, it’s not untreated.