u/BixTheBrave

Disabled cosplayer

I haven't been to a convention in ~ten years. I'm going to Anime Frontier in Fort Worth in December this year. I have dynamic disabilities. I have a cane, walker and a wheelchair. Probably bringing all three to be on the safe side. Plus the only thing it could hurt is cargo space, which isn't much of an issue.

My wheelchair is very wonky and I'll probably be making adjustments to it from what I can learn online. My walker is named after the cosplay I'll be wearing most, if not all, of the con. (Maomao). My hotel is next door to the convention space, thanks to my dear friend thinking of my accessibility needs. My caretaker and I will be getting accessibility bands, regardless.

I have a few pain conditions including ME/CFS, Fibromyalgia, and hypermobility, and chronic severe back pain. I'm also autistic and moderately agoraphobic. This con means more than I can express as the last convention I went to I was assaulted and it was my first time not cross-playing. Actually as soon as I arrived at the con (A-Kon....) in a pink school girl outfit, two men were bothering me, and when I tried to lose them in the ladies restroom...they followed me right in, I fawn responded to that, and took a stupid pic with them. Luckily the con staff saw this and came in to reprimand them.

My question is this-are there other disabled cosplayers that use/integrate your mobility aids to complement your cosplays?

I'm very blessed that I have my best friend and my caregiver/partner coming with me to help overcome my con PTSD and pace mentally. And the sensory-friendly room the con provides, will help immensely!

Another question, how do disabled cosplayers pace themselves for 3 day cons? I've been practicing going to busy malls on peak hour Saturdays with my crew, and it has definitely been helping. (Although when I bring my walker I can tell people are much more...gawk-y at me, I also don't dress to the social norms which I am aware doesn't help 😅).

Any suggestions are greatly welcome and appreciated dear friends!

reddit.com
u/BixTheBrave — 21 hours ago
▲ 3 r/FND

CW: Talk about symptoms and the possible cause of my FND.

​

I am a 34 year old non-binary afab person. When I was 19, my ex-boyfriend and I went to a rave at a club called Afterlife, in Dallas.

I had used MDMA multiple times before this, but I missed one vital thing. But before I get into that let me set the scene.

It's a dark club with a room for black lights and drawings on the wall in different colors of blacklight reactive paint. My ex didn't do anything but smoke ganja, and I had been researching and learning about MDMA since I was 14, first trying it when I was 17. And me being young and wanted to show off to my boyfriend that it was safe, that I'd done it so many times before I lost count even then. One singular problem... I took a supplement notice 5-HTP before the MDMA. This one singular moment of youthful stupidity is what now I believe, has caused my FND.

W we were in the blacklight room, him sober and me waiting for the right moment to plop the pill into my mouth after taking the 5- HTP supplement. And taking it after and wondered if taking it before would just make my roll stronger. The next thing I know there's a bouncer standing over us, time missing, and I had pissed myself. Apparently I had such a severe seizure that I peed myself and got the bouncer/staff to notice what was going on with me. I didn't have epilepsy, I'd had seizure - y feelings like I just experienced moments ago but it never would end up full-blown blackout seizures. From then on if my brain had too much happy chemicals, for example -too much excitement on the receptors of dopamine serotonin and norepinephrine, I would have seizures from then up until just a few days ago (without 5- HTP, and without MDMA). I haven't talked to my neurologist about this yet as it's merely a theory I'm working through. I think it is the cause of my personal functional neurological disorder. I now have movement disorders going back to my functional neurological disorder, and my ex explained what my seizure looked like, including foaming at the mouth and wetting myself. This is the most sounding like an epileptic seizure, but I've never had any epileptic-like seizures when I've been tested for functional neurological disorder. I have an EEG coming up on the 22nd and I will definitely bring it up to them the day before that I also have a new PCP, due to the negligence of my previous PCP.

I'm not looking for sympathy I'm not looking for being scolded because I was a stupid teenager who was in love and wanted to show my partner how incredible it could be.. I should have never done what I did and I knew better but my brain was young and dumb.

If anyone knows of anything that this could possibly connect back to functional neurological disorder there may be a way around healing it I hope. Please share your opinions and advice I could use all that I can get.

reddit.com
u/BixTheBrave — 1 month ago

Doc asked about s*xual abuse as a kid?

Heading to my doctor's appointment right now. In the paperwork he asks about sexual abuse as a kid...but WHY? How does that matter? I have suspected hEDS and POTS. I have a physical therapist who told me I do indeed have hEDS.

What does this question do? Seriously

reddit.com
u/BixTheBrave — 3 months ago