u/Brixoria

I was recently diagnosed with a BCOR/BCORL1 fusion CNS tumor after having my first seizure at the beginning of March. I had a craniotomy done soon after being admitted to the hospital. Resection seemed to be successful and the tumor looks to be small and grade 2.

Because this tumor type is so new rare and is mostly diagnosed in children, I was wondering if anyone else in this community close to my age has had experience with it.

I'm in the process of getting referrals right now to clinical trials but no word yet.

Any insight and connection would be appreciated