u/Business_Tension7011 — reddlx

Freaking out. Rapid progression over the course of days

Anyone else have intermittent for years and then boom rapid progression in a few days? Here is my timeline..

2023

Intermittent red, burning face that lasts 20 minutes or so. Sometimes every day for a week, then could go a month with nothing. Thought it was anxiety.

March 2026

Right index finger red swollen, painful. Lasted a day. Didn't connect it. Thought I jammed it or something.

6/26/26

All 5 right toes. Lasted about a day.

6/27/26

Just the pinky and big toe in right foot

6/29/26

Multiple face episodes throughout the day

Today 6/30/26

Bottom of both feet. Feels like I have been walking on hot cement for a long period of time.

Ugh. Officially diagnosed yesterday. Waiting 4-5 days for compound pharmacy to fill the lido/amitriptylline/ketamine cream.

I am terrified that it will continue at this rate.

reddit.com

u/Business_Tension7011 — 6 days ago

▲ 10 r/Erythromelalgia

Submitted an Evisit consult yesterday. Diagnosed today

See my prior post for history, but I received a response from the dermatologist I found through TEA. Classic erythromelalgia. She is starting me on the compounded topical lido, ketamone, amitriptyline and followup in 6 weeks.

reddit.com

u/Business_Tension7011 — 7 days ago

▲ 9 r/Erythromelalgia

I'm calling my pcp for an appointment tomorrow because I think I have this. For the past few years, I would get random episodes of hot, red, burning on my cheeks. I chalked it up to flushing from anxiety or stress, but now I'm not so sure. I don't think "just flushing" is painful and actually causes

For the past few years, I would get random episodes of hot, red, burning on my cheeks. I chalked it up to flushing from anxiety or stress, but now I'm not so sure. I don't think "just flushing" is painful and cause skin temperature changes that is so bad, my eyes get red and puffy. 3 days ago, I noticed my toes on one foot were red, puffy, and painful. Since then, I have had pain when walking. Sometimes it just feels like I have an injury and sometimes it is sharp shooting pain. It has happened twice in the last 3 days. First time, it was all toes on my right foot. Just a little bit ago, just the pinky toe and big toe. I didnt get a picture earlier until it had started to calm down, but you can still see. Pics below. Hoping to get ahead of this before it gets worse.

u/Business_Tension7011 — 8 days ago