u/Cautious_Zombie1525

Hi guys, I know I posted not that long ago about my diagnosis but I've just come to terms with it now and am sorting out treatment. Why are the NHS waiting times so crazy? I've paid for 2 private appointments so far as I could wait. My Serum alkaline phosphatase levels where through the roof, I have a microadenoma so I'm guessing it's functioning and probably the growth hormone one, which sucks because I'm going to need surgery. I know it's crazy to say but I was really hoping it was going to be a prolactinoma because I read you can get rid of it with medication. Already decided I'll have to take a gap year to recover from the surgery however I've just found out the waiting list on the NHS is about 6 months. I really can't wait that long, I'm funding this all myself as my parents want nothing to do with it and telling me I'm being irrational for paying privately for all these appointments, however I'm just wondering if anyone was in a similar situation and what did they do? Should I get a loan? Or go to a surgery with installed repayments? Or wait for the NHS, my biggest fear is loosing my eye sight for waiting to long. The tumor 4.7mm x 4.7mm idk if that's big or not for a microadenoma and I was told there is some distance between my optic bit and the tumor. I also don't have a job currently I had one at 16 and saved around 11k so that's what I'm working with. I will obviously have to get a job after surgery.

Hi I'm 18 years old and just got diagnosed with a microadenoma on my pituitary gland. Spent a lot of time crying and freaking out over it, just wondering if anyone else has gotten diagnosed this young or had the same type of tumour and what treatment you got? My GP says I just need to live with it and it's not doing me any harm and I've probably had it from birth. But I can't help but feel like this is going to reduce my life expectancy and has gotten me in a really depressive state. I kinda want surgery but I don't know if it's going to make it worse.

Please don't write anything that's going to freak me out more ❤️

Just looking for reassurance. I'm 18 years old and had an mri 5 months ago because my nan was diagnosed with terminal glioblastoma, I had a constant headache and nose bleeds so just wanted to get it checked out. After the scan I didn't hear anything so just presumed there was nothing wrong with the mri. The nose bleeds where still bothering me though as I would have to run out of lesson in class as they would just come on out of the blue, so I decided to consult with an ENT who wanted to see the mri results. I called my GP and they told me they didn't have the results so I needed to call the hospital, called the hospital and they told me my GP had the results. (I'm from the UK so this is the NHS). In the end I decided to just make a follow up appointment to hopefully get the images, and then the next day I get a call from the doctor that he needs to see me urgently, and he told me he's only just received the results and that there looks to be a tumour on my pituitary gland or it could be physiological. He told me on a Friday and it was the bank Holiday weekend so I had to wait 3 days before I could arrange any further scan, it really took a toll on my mental health and my first a level exam was in a week. Since then I had to go private to get a contrast mri as the NHS continued to mess be about. I am extremely worried and just wondering if anyone else had physiological written on the mri and if that means it was just stress.

Sorry for the long essay, it's obviously genetic for me and I'm only 18 so I'm really freaking out.