u/CelebrationLocal6155

i often see people here asking for accessible hobbies and i found this video on easy crafts. it isn't about disability and they are not going to be accessible for every level of this disability, but i found it helpful, maybe you do too (this is not spam im not the person on the video, just thought it could be helpful).

i'll copy the list below but in the video they explain why they are simple and there are links to tutorials, so maybe you also want to watch it.

• needle felting
• tempera paint sticks
• gesture & blind contour drawing
• collage
• applique patches
• poetry

https://youtu.be/r2PvofFQL18t

i see posts of people getting all these supplementes, calculating their diets, avoiding and esting certain types of foods, keeping track of their heartbeat, getting stuff to accommodate their homes and i feel like i dont do enough. theres so many things with this illness and so much misimformation i get overwhelmed by everything.

i try to drink water, i pace, i try to eat food that wont make me feel sick, but honestly i dont even have the energy to cook for myself im not following any "low histamine" diet, i dont even know what ingredients have high histamine, i dont have the money to buy things that maybe will work for me or maybe they wont. but i should get a pregnancy pillow and new compression stuff and electrolytes and supplements but i dont want to do the research and spend money.

i feel so overwhelmed by pacing and all the pills i take and using and handwashing the compression stuff and all that it just feel like caring for myself is already a full time job and i dont want to add to it.

but maybe im making myself sicker, maybe i could be better if i did all that. and maybe i should go to the doctor for [possible comorbility]. and i should read more about this, i feel like i dont have enough info about this, i see people explain this illness so clearly, i would like to learn but theres also so many different theories and people say different things and i should go and read the scientific papers but honestly im tired and scientific writing can be so confusing. and im the kind of autistic kind of person that loves to learn a lot about stuff but im also overwhelmed.

i mean at least i see a doctor for this and i do what she tells me, but maybe i shoud do more.

TLDR: i feel like i should do more to help myself but it feels overwhelming.

EDIT: wow, thank you all so much for the responses, i didn't expect that many, you are so kind. i struggle with answering individually but i have read every comment and i really appreciate everything you have said ❤️