Toddler diagnosed
Hi everyone. I’m a mom of a toddler who is 20 months old. After her recent scope we have had the diagnosis of EoE. The guilt I feel is horrible. I have been gaslit by both my parents, my husband’s parents, by doctors, and other mothers, that my daughter was perfectly fine.
My daughter’s symptoms started at 7 months old. (December) We had survived norovirus two weeks prior she never threw up had no problems. One random afternoon she was sleeping in my arms and proceeded to Projectile vomit every where I assumed she got a second round of the virus but this went on for two weeks. Went to the Er they told us it was a stomach bug gave fluids and sent us home, was going to send us to a GI doctor. Our pediatrician kept telling us it was just constipation and to give prune juice, her stomach was just maturing. So we gave juice and canceled the GI appointment think that our doctor knew best. She continued vomiting up till her first birthday around August. We switched Pediatric doctors.
She had completely stopped getting sick and then we traveled to a birthday party and she vomited everywhere in the car. We scheduled a GI appointment again got in doctor said we’ll try reflux medication she’s fine. We come back 7 months later and my daughter has not gained weight. Which makes no sense because she eats EVERYTHING. I’m being told she’s failing to thrive we need to do a scope. We had already started cutting dairy at this time. I noticed Her eczema is finally clearing up after weeks of her chugging watered down apple juice. GI doctor recommends to give Senna to do a stool clean out. We do that. Show up for the scope and then the Surgeon comes back afterward and tells us she’s confident our daughter has EoE. Instantly concerned because there’s mild inflammation. What does that mean and how do I fix it thoughts.
We told my in laws no diary over at a grandparent sleepover the next night. (We have a running joke before hand about no diary(ice cream)). But I was very stern about the no diary for her specifically. They turn around and immediately give her ice creams Four hours later we get a message our daughters struggling to go to bed. She’s struggling to stay asleep, she wakes up and cries once, every hour but goes right back to bed. Leading me to think she’s in pain. We tell them more information about her condition the next day. we’re waiting on official confirmation at this point she has EoE, and The in laws take it as it’s just a hoax diagnosis and it’s not real. “She’s fine. You’re just overreacting”
So my question for everyone is.
How do I explain this is not an hoax diagnosis this is real and soemthing she will live with, possibly painfully (she doesn’t talk yet so we don’t know), for the rest of her life?
Also the doctors told us wheat, diary, nuts, eggs, and soy are most common allergens.
Does anyone struggle with avocados, bananas, or limes?
We taken those out of her diet because she projectile vomits everytime she eats banana.
Thank you for your help/ advice.