i’m an 18 year old female and i’ve been struggling with many symptoms since around the age of 10. i got diagnosed with POTS at 16, which was so relieving to know i wasn’t making it all up. however, no matter what i do i still feel awful. i genuinely don’t remember the last time i felt energy or no pain in my body.
i frequently experience PEM — i’ve had to stop doing many things that i enjoy. it started out not being able to travel, then not being too far away from home (2+ hours), then i realized i could never go into the career path i wanted. i’m just freshly an adult and already considering a wheelchair, because it makes life so much more manageable for me.
i just recently was introduced to ME/CFS, and i feel like it could be what i’ve been experiencing for so many years.
my problem is that i don’t know where or who i’m supposed to go to in order to get evaluated. do i start at my primary care, jump to a specialist of some kind..?
i’m just so tired of constantly trying to figure out what’s wrong. i want someone to tell me what’s going on. i’ve got pictures of the symptoms i experience frequently added to this post.
(i also would like to say; i’m aware how privileged i still am. i have the ability to walk, talk and get out of bed. i understand that many people in here don’t have that capability and i recognize your situation. i do not think (if i do have ME/CFS) that it is a severe case.)