My complex story.. what is going on with me..
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On April 10th i got an Lumbar puncture. Next day leak.
Couldnt get up, tinitus, nauseau and felt like i was pulled down when standing up, pressure in the neck and headache in the back of the head. Also the worst for me was when laying down i was on a boat. Non stop.
On April 14th i got my first blood patch. 19cc of blood.
No changes. Felt pressure in my ears when injected the blood but that was it. Admitted in Hospital because i was really sick.
April 16th second patch 20cc blood. Send home after 4 hours laying down after the patch i felt something in my head after, a changed pressure i think. The next days at home some headaches, and just sick.
But the pain in the back of my skull was gone
A couple of weeks later the boat feeling left.
But then started my main symptoms: de dropping sensations. I feel this in my head, but also in my back..
Its horrendous. Also i feel a G force sometimes laying down on my side or sitting on my knees when doing the laundry in the machine.
When i move my back when laying down i get a wave of dropping feelings. But it also happens sitting, or standing. It doenst matter if i sit or stand or laying down.
Also had a couple of weeks the feeling i was in an elavator.
The dropping sensations are ruing my life. Its constant also when laying in bed i feel like i sink in the matress.
They did an mri spine and mri brain, they where clear.
I asked for an second opinion, send to an leak center in Amsterdam. (Im from the netherlands) and they suggested to do another bloodpatch.
They said the expected still a micro leak.
But they where also in doubt.
They did an multi level patch of 22cc
And yet no difference.
I dont find any stories exactly like mine i dont have any headaches. Just non stop dropping sensations
Also tried diamox. No differance.
Is this fitting a micro leak? An nerve inflammtion??
All my hope is gone and its not mangable