u/Complex_Coffee_9685

I recently started calcium d glucarate for pfs. I was in trt and quit after learning about theory and the same week of last injection I started CdG. By the end of that week I was getting insane night and morning wood as well as some decent libido. Then something weird happened. I had sex with girlfriend and the orgasm felt much better than previous expiriences. The next day I woke up and my penis was irritated and red. Now me and my girlfriend do not have stds and we retested after this expirience to rule it out. She was not affected only me. My pebis was shedding skin like crazy, and not on the shaft on the head, aswell as the surrounding foreskin was super red too. While that was happening I recovered full sensation in my penis I could feel hot and cold and touch but it wasnt the most pleasant since it was still irritated. After those 2 days the shedding significantly decreased althiugh it still did and I kept taking CdG. It been about a total of 3 weeks on cdg and I finished the bottled, but this week I started expiriencing crazy panic attack episodes, none were super string or lasted much until yesterday, I got a bad one to the point I thought I was dying and went to the ER. Ekg showed fine no signs of glucose related issues. They gave me some vistoril which calmed me down and knocked me out cold. This could be due to the fact my test levels might be plummeting as my hpta tries ti comeback on but im depleting its supply with CdG. Will keep updated since now its a matter of waiting for my test levels to comeback up, and see if I recover my previous baseline which was much better (daily nocturnal and morning wood). Ever since pfs ive had arousal which means my body initially tries to feel horny but it doesn't sustain, and I noticed last time I saw my gf that ny arousal was much stronger but still doesn't sustain and sadly my penis is numb again, although the foreskin retained its sensitivity. I'll have to wait and see what happens and hopefully these episodes stop and I bounce back. Would love if Dr.Powers sees this anecdote so please treat this post well im just reporting what ive been expiriencing. One more thing I would like to add is that the shed was very similar to when I first got pfs, I also had a shed but instead my oenis became cold and shirveled after.

Hey im a pfs patient and I was on trt for about 6 weeks and quit because Dr.Powers said it could be bad. I then proceeded to also start using calcium d glucarate daily, today was my last dose. For context I stopped trt around 3 weeks ago which means the trt is mostly out of the system by now meaning my test levels are probably very low. My testicle do feel alot fuller so im assuming my natural production is kicking in. However this past week ive had 3 episodes of what I can only describe as fasting hypoglocemia. If I go more than 4 plus hours sometimes 5 or 6 my heart will begin slowly beating fast, then I'll feel like I gotta breathe deeply, slowly it transitions into shakiness and ultimately anxiety. It always stops once i eat if it gets that bad I'll have a sugary drink to get me out of it so I know it has something to do with glucose. Will CdG and quitting trt cause this? Im a fairly healthy guy (despite pfs) and ive fasted before whole days and donde 0 carb diets and never expirienved any of this. Im very concerned. Today ive had snack throughout the day to feel fine and havent felt anything, but im still very worried. Id Dr.Powrers or anyone can let me know it'll be much help.

Was doing trt for pfs and quit cold turkey, aswell as started CDG. Im almost out of CDG and idk what my hormone levels are but in assuming extremely low... today I woke up feeling like shit. Idk if this was a good idea but I have only 2 more doses of CDG left. Will let my body rebound after and report once this has blow over. Would like to know if this was a stupid idea.

To explain my question, I have pfs, I have yet to get any of the tests recommended but I am planning to do so! My question is how close are we to narrow down phenotypes just based on the description for pfs. For example in my case im purely sexual, although I could enjoy music for a while, and did develop some gut issues which have gotten better. I have been on trt once and it made everything better before it stopped working, tried cream which did absolutely nothing. Now back on trt one last time. I don't seem to crash, or get worse. After dtopping cream my hpta came back online immediately and I even had a better baseline. Idk wtf is going on with me all I know is I still have pfs and aecual dysfunction.

Anyone ever heard of this guy, claims to have helped many people. Know some guys that have worked with him say he actually tries to help, haven't heard from them in a while. Is he legit? Or is it all blind luck?

I went to the website filled everything out, said I would be reached out to, never happened. How do I know if im on the waitlist or not? How do I know if I even did it right?

Can someone please name the tests Dr.WillPowers recommends. Dont just say blood test, and sequencing. Tell me what type of blood tests what should it include, any specific sequencing package? Dutch is just the Dutch test I believe so nothing special there, unless there are different types.

After seeing the videos and reading the theory it sounds very good and explains alot of things that happen with the disease. My one question is, if the theory suggest one has a build up of weak metabolites because of blocking 5ar but then we come off but out 5ar is still not working or how Dr.WillPowers phrased it, out body became selective of which metabolites to use, shouldn't we still keep seeing very low Dht? Cause this is not the case for me at all, my dht is actually quite high now which would definitely suggest my 5ar is doing something. So my question is what is the explanation for that, and would someone with high Dht but still having all these symptoms, would that mean I have just epigenetic silencing? That part has me very confused.

I know Dr.WillPowers recommended a couple of tests in order to gather data, I wanna get them done. Can you guys tell me which those are and where you got them from. Once I get them done I will make a detailed post with the results and my story on finasteride, if the theory is correct we should eventually be able to diagnose the pfs phenotype just by symptoms and when/how you got pfs.

I think it's almost over for me, idk how much mote I can take. 24 y.o. Male got pfs at 22. When I first crashed I had brainfog, penile fibrosis, all the sexual symptoms etc. Fast forward 2 years pretty much nothing has changed. The penile fibrosis and pelvic floor pain got alot better, brain fog went away after 2 weeks of quitting fin. That being said, libido, orgasm sensation, gut issues lack of dopamine that causes me to be able to enjoy music is all there. Ive been trying thing to get better but nothing helps. At this point I would rather you guys tell me suspected cures or protocols and I can do then and report back, idc what happens to me anymore I just wanna get better so im willing to try anything.