28 weeker coming up on 2nd birthday still hasnt met milestones. Discussion of a diagnosis of non-verbal autism.
My sweet girl was born at 28 weeks due to my water breaking at 25+5. I had to have emergency c-section due to placenta abruption. She had a IVH (brain bleed) a week and half after she was born. We are coming up on her 2nd birthday and she's barely on solid foods. (Mostly from sensory aversions, not because she can't eat solid foods and she learned to feed herself so if its not a texture she is comfortable with she won't touch it or allow you to feed her.) She still doesn't sit up on her own. We are going to therapy (Speech, OT and PT) like its a full time job, Early Intervention comes out 3 times a week. We are also currently waiting to be fitted for a gait trainer. Our last visit to her neurologist, she put in an order for another MRI/CT scan, wants more in depth genetic testing and asked if anyone had brought up the possibility of non-verbal autism. Then, said at this point more aggressive therapy is our best possible option for her brain development. I know navigating life with a premie is unpredictable and everyone's journey is a little different. I'm just trying to see if anyone has experienced anything similar or if there is something I can do to better help my child that Im not currently doing?
*I hope this isnt confusing. I tried simplifying this the best I could as this barely touches the surface.*