En coup de sabre??
Hi everyone,
Looking for a bit of reassurance or to hear from anyone with similar experiences.
I’m under rheumatology with inflammatory-type lower back pain and GTPS/hip enthesitis that responds well to NSAIDs. MRI ruled out sacroiliitis but showed Modic type 1 changes at L5/S1. Steroids over Christmas helped significantly, although symptoms are still up and down. They said it was possible a one off flare up and keep moving my follow up.
Bloods have mostly been normal/negative apart from positive P-ANCA and anaemia. I also have Raynaud’s and a family history of AS (uncle).
Over the last week I’ve noticed a line/indentation down my forehead that seems to have appeared quite suddenly. Initially I thought it was just age/wrinkles (I’m 40), but now I’m worried everything may not be purely mechanical and I’ve come across linear scleroderma / “en coup de sabre.”
I’m contacting rheumatology to ask about an earlier review, but has anyone had a similar journey or presentation, especially with mostly negative bloods?
Thank you Kind folk 🙏🙏🙏