Found the cause of my husbands Vestibular Migraines
My husband has Meniere's, vestibular migraines, drop attacks, and regular migraines. I won't go into too much detail, but the last year has been hell for him. His regular migraines were being controlled with Nurtec, but he was having vestibular migraines multiple times a week, sometimes lasting a few days. We tried the low-salt diet, but that didn't help.
I got him in to see a doctor at Hopkins, and while he was talking about the migraine diet, I noticed it's very similar to the low-histamine diet for MCAS. After hours of research, I found an MRT blood test through Oxford that tests for sensitivities. I'll say this up front: I know there is limited data on sensitivity testing, but this one is different from most you buy online.
His test results came back after only 4 days of the blood draw, along with a diet to follow to avoid his trigger foods. He's been following a low-histamine diet for 3 months now, has been taking H1 and H2 blockers, and Quecertin, and has had no vestibular migraines. One of the foods on his "no" list was rice (which I found odd). However, he tested this by having 2 tablespoons of rice, and within 10 minutes, he had a vertigo attack after not having one for 3 months. There are H1, H2, H3, and H4 receptors in the inner ear.
He said he feels the best and most stable he has in years. I also have an appointment scheduled with an MCAS-trained allergist/immunologist to discuss possible MCAS.
I'm writing this to let other people know about a potential diet that could help. The MRT test is expensive, but in my opinion, absolutely worth it. At the very least, a low-histamine diet, Zyrtec, and Pepcid could help.