is this relatable?
For around 3 years now, I have had strange episodes that ive found really difficult to explain to doctors. I basically was told i was experiencing anxiety so its become very normal to me. Last night it happened again (worse then usual) and now im pretty sure its some sort of focal seizure.
I felt a huge wave of doom and my hands legs and arms began shaking uncontrollably. My neck was twitching uncontrollably which scared me. It would go away and i would finally think it was over, then my stomach would drop and it would begin again.
This has happened to me before, I experience neck tremors quite often, normally however I kind of just wait until its over and dont think about it until it happens again.
Last year I was having really upsetting episodes and went to a therapist as I was told it was anxiety. The therapist thought i did not sound like I had health anxiety at all. I also get quite dizzy/disoriented and have to lie down.
I have never had a proper seizure and been unconscious- has anyone experienced this before without having full body seizures?
I did not call health services last night because I have done this previously (my friend called them for me) and they were convinced I was having an anxiety attack (that time it was my hand and arm spasming) I also experience numbness in my face along with the ticking.
I’m not looking for someone to tell me this is definitely focal seizures - id just like to know if I need to be more pushy with my doctors because Ive dealt with this for so long that when someone tells me its not bad I don’t fight back because I dont really know whats happening to me anyway and its happened enough times that I know its not going to kill me. I also have quite bad heart palpitations, I had an ecg and everything was normal.
I’m 21 and live alone in london and I’m afraid that something worse could happen to me and no one will notice.
I am very much going to the doctor but I live in the uk and its very hard to be taken seriously unless act like your dying. I do understand why they have been telling me its anxiety because I dont think ive been explaining my symptoms very well- and maybe it is! But I dont feel anxious or worry about it happening when its not happening- as soon as its over I just move on.
When I was in school I used to have these weird “migraines” where I just felt weird but couldn’t really explain what was wrong. Recently Ive also been seeing lights and flashing in my vision.
Let me know if anyone can relate- and also if you think this is something else, I’m not trying to be dramatic I just need to know if this sounds like something i need to make a fuss about. Unfortunately i’m very very laid back in general and don’t know how to show the doctors that Im genuinely experiencing something abnormal because I seem (and feel) pretty put together when I talk about it in person.
I also have periods of insomnia and I believe this in conjunction with low blood sugar could be triggering it. I only learnt about focal seizures because I thought my dog was having one so I researched them, when it happened to me last night I thought it was my blood sugar and saw that this could trigger seizures- i realised the symptoms and suddenly I felt like I knew what this was (could be wrong obviously) Thank you!