Severe ME spaces
Summary: struggling with not feeling understood even within the ME community due to lack of severe ME friendly spaces.
I’m struggling at the moment with feeling like spaces that are meant to be for those with severe ME end up having people (maybe a vocal minority idk) who are talking about things that very much don’t seem like something someone with severe ME could do. A discord I’m part of currently with a severe ME channel has people in there talking about going on holiday, or out for meals with family.
I absolutely don’t want to gatekeep support networks or say anyone’s struggle isn’t as valid, as everyone deserves support and all severities are tough. I just feel like most people don’t understand severe ME as it is and it’s nice to have a space where people do understand without it being filled with those who can do much more than I can (and I’m on the milder end of severe). For reference, I don’t think this subreddit is included, I mostly mean dedicated severe ME discord channels or Facebook groups.
Not sure the best way around this as I know everyone’s symptoms and struggle looks different so it’s not too easy to police?